At just three years old, Jack Kennelly became the first child in Australia diagnosed with the rare and aggressive brain cancer known as rhabdomyosarcoma. Despite initially showing no typical symptoms of cancer, Jack’s journey has been marked by resilience and bravery, capturing the hearts of many.
Jack’s mother, Kristen Kennelly, first noticed a change in her son’s behavior, as he transitioned from an energetic child to one that became increasingly irritable and lethargic. She initially attributed his changes to a minor cold, believing he was simply fighting off a bug. However, alarming signs escalated when Jack fell asleep unexpectedly while playing at daycare.
Kristen recalled, “They would call me and say, ‘It was a bit strange, we found him asleep on the grass.'” Her concerns deepened as Jack’s fatigue persisted. One evening, while at a friend’s house, Jack approached his parents, complaining of severe head pain. This prompted Kristen and her husband, Paul, to rush him to the hospital.
After several tests, Jack was sent home, but when he vomited the next day, the family returned to the hospital. This time, a CT scan revealed a tumor, leading to an urgent transfer to Sydney for further treatment. “In one sense, I was really thankful that something was happening,” Kristen expressed, highlighting the overwhelming nature of the situation.
Following a series of medical evaluations, doctors identified Jack’s tumor as rhabdomyosarcoma, a type that typically forms in muscle tissue rather than the brain. Through the Zero Childhood Cancer Program, further analysis revealed a genetic mutation known as a DICER1 variant, which makes Jack susceptible to tumors.
Despite the grim diagnosis, Jack’s family remained hopeful. He underwent nine surgeries, six rounds of chemotherapy, and six weeks of radiation treatment—all completed without anesthetic, which helped him avoid additional procedures. Kristen noted, “The really unique thing about Jack is that he doesn’t complain, and he never has.”
Jack’s treatment journey was not without challenges. There were moments when medical staff doubted Kristen’s concerns about Jack’s condition. However, the persistence of a nurse eventually led to a crucial scan that confirmed a blockage, requiring immediate action.
A pivotal moment occurred when doctors performed one final surgery to remove what they believed was remaining tumor tissue. To the family’s disbelief, the oncologist reported, “It’s gone. It must have been post-radiation swelling.” This news marked a significant turning point in Jack’s battle against cancer.
Now at six years of age, Jack is slowly returning to his playful self, though he continues to face vision issues and hormonal challenges due to his treatment. The DICER1 variant necessitates regular monitoring for any new tumors.
In gratitude for the support received during their difficult journey, the Kennelly family is actively involved in fundraising efforts for children’s cancer charities. One upcoming event is “Step Out For Cancer,” set for November 9, which aims to raise $800,000 for the Minderoo Children’s Comprehensive Cancer Centre, the first specialized childhood cancer center in the Southern Hemisphere.
Jack’s story serves as a poignant reminder of the strength of the human spirit in the face of adversity, as well as the importance of community support in battling childhood cancer.
