The Australian government has announced a significant shift in its approach to autism support, redirecting some children from the National Disability Insurance Scheme (NDIS) to a new initiative named Thriving Kids. Health and Disability Minister Mark Butler revealed this plan last month, stating that “tens and tens of thousands” of young children with mild to moderate developmental delays or autism currently enrolled in the NDIS are on a program designed for those with permanent disabilities. This framing has raised concerns among advocates, as it risks suggesting that autism is a condition that can be outgrown.
Critics argue that autism spectrum disorder (ASD) is a lifelong neurodevelopmental condition, not a temporary phase. The government’s decision to redirect support raises questions about what resources will remain for autistic individuals as they transition into adulthood. Understanding the specific supports needed for autistic adults is crucial, especially as many do not qualify for the NDIS and must rely on varying services for assistance.
Understanding Autism and Support Needs
ASD is characterized by differences in social communication and behavioral flexibility. These characteristics reflect a distinct way of thinking and functioning, which can lead to significant distress or impairment in various settings such as school, work, or social environments. Diagnoses are categorized into levels 1, 2, or 3 based on current support needs, but these levels are not predictive of future challenges.
For example, many adults assessed as level 1 or 2 may still encounter substantial barriers in daily life. Support requirements can shift over time and depend on various contexts, illustrating the necessity for adaptable and person-centered services.
Support needs for autistic adults vary widely. Some may require in-home assistance to manage daily routines, while others may live independently but struggle with factors like executive functioning, emotional regulation, or burnout. These difficulties can complicate everyday tasks such as grocery shopping, paying bills, or attending appointments.
Flexible Support Services for Autistic Adults
Service models aimed at supporting autistic adults should be flexible and person-led, focusing on their overall wellbeing rather than attempting to “fix” autism. Effective support includes developing daily living skills through occupational therapy. For instance, occupational therapists may assist by breaking down tasks into manageable steps, introducing visual schedules, or teaching navigation using public transport systems.
Mental health support is equally important, encompassing psychological therapy, counselling, and peer support tailored to individual needs. These services may include strategies for managing stress, emotional awareness, and developing calming techniques.
Additionally, enhancing communication and social connections is critical. Speech pathologists can help individuals improve conversation skills, understand social cues, and articulate their needs, with services provided in various settings to match personal preferences.
Creating safe environments at home, work, and in the community is essential for fostering a sense of belonging. Support may include peer mentoring and advocacy training, assisting individuals in expressing their neurodivergent identity and ensuring they feel secure in their surroundings.
International Models of Support
While support for autistic adults remains underfunded and insufficiently researched globally, some countries are making strides. The National Autistic Society in the United Kingdom offers tailored services including supported employment and housing, helping autistic individuals achieve independence and meaningful engagement within their communities.
In Canada, organizations like the Neurodivergent Collective of New Brunswick foster peer-led initiatives that address mental health, relationships, and daily challenges, promoting community and reducing isolation for autistic adults.
Australia is beginning to see an increase in support initiatives for autistic adults, although a clear evidence base for effective practices is still lacking. Ongoing research aims to address these gaps and improve the quality of support available throughout an autistic individual’s life.
The evolving landscape of autism support underscores the importance of informed policy decisions. As Australia navigates these changes, the focus must remain on enhancing the lives of autistic individuals and ensuring they receive the necessary support to thrive.
