More than 70 landmarks across Australia will illuminate in red today as part of the Red Shoes Rock campaign, aimed at raising awareness of Fetal Alcohol Spectrum Disorder (FASD). This hidden and often under-diagnosed condition affects up to one million Australians, highlighting the need for greater public understanding and support.
The Red Shoes Rock initiative encourages individuals to wear red shoes or socks throughout September to spark discussions around FASD and promote alcohol-free pregnancies. The campaign seeks to create supportive communities for those affected by this lifelong disability.
Understanding the Impact of FASD
Ayla Chorley, CEO of the Foundation for Alcohol Research and Education (FARE), emphasized the critical issue of prenatal alcohol consumption. “Alcohol consumed at any stage of pregnancy passes directly to the baby and can damage their developing brain, body, and organs,” she stated. This exposure can lead to FASD, a condition that manifests in various lifelong challenges.
Chorley continued, “With the right supports and understanding from health professionals and communities, people who live with FASD can be given every opportunity to thrive. That’s why it’s so important to have conversations about FASD, and invest in prevention, early screening and informed supports.”
Sophie Harrington, CEO of the National Organisation for Fetal Alcohol Spectrum Disorders (NOFASD Australia), echoed these sentiments. She stated, “People with FASD have the right to be heard, understood, and supported. This September, we’re encouraging everyone to head to a Red Shoes Rock community event, commit to learning more about FASD or post a photo of their red shoes on social media to join in the conversation.”
Donnella Mills, Chair of the National Aboriginal Community Controlled Health Organisation (NACCHO), highlighted the proactive stance of Aboriginal and Torres Strait Islander communities in addressing FASD. “By talking openly, sharing knowledge and standing together, we create a future where every mum feels supported and every bub grows up strong and thriving,” she noted.
New Research Highlights FASD Prevalence
Recent research conducted by the University of Sydney marks the first effort to estimate the prevalence of FASD in the general Australian population. The study revealed that up to 3.64% of Australians, approximately 990,800 people, may be living with this condition. This estimate is based on data regarding alcohol use during pregnancy and the associated risks of FASD due to prenatal alcohol exposure.
Distinguished Professor Elizabeth Elliott AM, Co-Chair of the national FASD Advisory Group and Chair of FASD Hub Australia, remarked on the need for comprehensive action. “This study shows we need action across multiple sectors – health, education, justice and social services – to ensure supportive environments for alcohol-free pregnancies, early screening and informed supports for people living with FASD,” she stated.
Federal Minister for Health and Aged Care, Mark Butler, expressed the government’s commitment to addressing this issue. “The Albanese Government is proud to fund the Every Moment Matters campaign, which continues to significantly reduce the health harms of alcohol across Australia,” Butler said.
Lived experience advocates also shared their insights. Jessica Birch, who was diagnosed with FASD at age 33, emphasized the challenges faced by individuals with the condition. “People living with FASD have just as much need and desire to participate fully in their communities; we often just need help to do that. Greater awareness means greater understanding, support, and capacity for individuals to succeed in a world that often feels too challenging to navigate,” she remarked.
Angelene Bruce, another advocate whose son has FASD, noted the impact of visibility and conversation surrounding the disorder. “Seeing stigma-free, courageous conversations and real representation of FASD in events like Red Shoes Rock means the world to families like mine. It gives children the dignity and acceptance they deserve,” she said.
As the landmarks across Australia glow red today, the Red Shoes Rock campaign serves as a reminder of the importance of awareness and community support in addressing the challenges of FASD.
For more information on the events and participating landmarks, visit the NOFASD Australia website.
